Menopause

My Cancer Story: Oncology Check

As an endometrial cancer survivor, I visit the oncologist once a year and six months later, the gynecologist. Although I wouldn’t dare skip one of these appointments, I do feel some apprehension before and during each check up.

I’m happy to step into UNC Hospital again though. The doctors and staff saved my life, and I’m grateful beyond measure. The hospital is nicely designed and decorated, and the food is good. My memories are joyful ones, especially the moment when I got the first pathology report.

Before my latest appointment a few weeks ago, I studied the brush strokes on this painting in the waiting room. Now that I’m taking an art class, I keep my eyes open for art education opportunities.

On to the check up.

The news was excellent: No sign of recurrence. I asked my doctor a round of questions because I like to get my money’s worth. (A visit to UNC Hospital is not cheap.) Then Cliff and I went for a celebratory lunch.

Since my news is happy news, let’s move to a more carefree topic. When you go to the doctor, and the nurse tells you to undress, do you climb on the table once you have on the drape or robe? Or do you wait in the chair?

In my younger days, I felt duty bound to climb on the table.  But that old table can be hard on the back while you wait. And wait. And wait.

So now I don’t get on the table until the doctor comes into the room.  I snapped this selfie to show you. (I’m glad the doc didn’t catch me taking it. None of my doctors has expressed any interest in my menopause blog. Why not? Who knows? A question for another day…)

Back to the question at hand. Table or chair?

Do tell!

To read more about endometrial cancer and my experience, check out the link at the top of the page or click here.  Endometrial cancer has a high cure rate, if caught early, and is the most common cancer of the female reproductive system. 

Menopause

My Cancer Story: Two Years

Barbara Before Surgery

It’s been two years this summer since my surgery for endometrial cancer. I look happy in this pre-surgery picture, and in many ways, I was. What I call “Cancer Courage” had set in. And I felt quite loved by Cliff  and my friends and my church that day and well taken care of by the medical world

After the surgery, I was happier still. The pathology news was great–early stage cancer and no further treatments.

But as happy as I was then and am now, cancer changes you. You cross a line. The line for me is that I now live in fear of recurrence. The stats say this cancer should not return, but I’m on daily alert for blood, the sign it’s back. The blood worry has gotten better, which my oncologist said it would, but it lives with me always.

If you know a cancer survivor, treat your friend to a movie or an ice cream cone or a glass of wine.I can promise you that unless he or she is an off-the-charts optimist, your friend worries too. I now understand what a cancer check means. I go every six months and hold my breath until the doctor says, “Looks good.” Then I treat myself to an ice cream cone.

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I’m now an advocate for endometrial cancer awareness, and I share resources I find. A few weeks ago I came across this excellent brochure produced by the Foundation for Women’s Cancer. 

I’ve dedicated a page on Friend for the Ride to endometrial cancer. You can visit it here. Please share this page on your social media sites. Let’s spread the word! Thanks!

Menopause

My Cancer Story: Twenty Months

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As I wrote here, sometimes joy abounds in shocking ways. I never would have guessed that my two days spent in this place, UNC Hospital, would be two of the happiest of my life. On my way back for a checkup at twenty months, this thought hit me anew. And why so happy? A successful surgery, little pain, AND a best case pathology report. My cancer was early stage, and I needed no further treatments.

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That’s my reflection in the glass. I had about twenty minutes before my appointment, so I took a nostalgic stroll around the hospital. I walked past the desk where Cliff and I checked in at six AM on surgery morning. I recall feeling subdued but calm. In an article I wrote for Sixty and Me, I called it “Cancer Courage.” Shout out to reader Cheryl who is rocking Cancer Courage right now, as she prepares for her sixth chemo infusion for breast cancer.

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The Ladies Room Door Art Series had just begun. I was pleased at my pre-op visit to find this door with UNC’s symbol of the Old Well. Snapped it again!

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And what a happy ride I took in one of these slick carts when it was time to go home post-surgery.

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I’m a Duke grad, but I got my master’s in library science at UNC. In fact, I had my first gyno exam at the health facility there shortly before my wedding. Never would have guessed I’d return almost forty years later for exams of a more serious nature.

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Even though I’m twenty months post-surgery, it still takes me back to see this sign. Oncology. Think Cancer.

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The photos below no doubt call up a yuck reaction. Most women hate pelvic exams. I’ve become a pro, but more importantly, I don’t hate them anymore. Thus far, post-surgery, they’ve brought me good news. It sure puts a bounce in my step when the doctor announces that all looks well. (A bounce in my step, that is, after I get off the table).

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My oncologist, Paola Gerhig, confirmed that I am to see her once a year and my gynecologist six months later, for five years. At that point, if I’ve had no recurrence, Dr. Gerhig will release me to the care of my gynecologist.

But not before I say what I say each time I see her: “Thank you for saving my life.”

Endometrial Cancer:  Please don’t hesitate to contact me, as some of you have, with personal concerns. You can read my cancer story on Friend for the Ride’s Endometrial Cancer page.

 

Menopause

Tampons for Screening Endometrial Cancer

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Endometrial cancer, which I had surgery for in July, 2014, is the most common cancer of the female reproductive organs. The cure rate is very high if caught early, but there’s no early detection test.

Good news! That test is on the way. And it involves our old friends: tampons.

The Mayo Clinic reports: “Researchers at Mayo Clinic have shown that it is possible to detect endometrial cancer using tumor DNA picked up by ordinary tampons. The new approach specifically examines DNA samples from vaginal secretions for the presence of chemical “off” switches — known as methylation — that can disable genes that normally keep cancer in check.”

Read the rest of the article here.

And watch this short presentation by one of the researchers.

I don’t have any more details on the test such as the false positive or false negative rates or the cost, but let’s hope the research is right and the test proves a good one. Talk about being rescued by a tampon!

Menopause

My Cancer Story: One Year Checkup!

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At my post-op visit following surgery for endometrial cancer in July, 2014, my oncologist explained that for the next few years, I would visit her at UNC Hospital and then six months later, my gynecologist. So at the one year mark, it was the gynecologist’s turn. Love Dr. Freid! I wrote here about his kindness when he called with my diagnosis last June.

Although it can manifest itself other ways, endometrial cancer tends to return as vaginal cancer. Yikes! Talk about a creepy thought…

As I sat in the waiting room of Chapel Hill OBGYN, my cancer visits and tests flashed into my mind, but I mostly thought happy thoughts. Surgery behind me and with a good prognosis, it’s fun to watch the pregnant women come and go. Been there, done that.

Dr. Freid’s nurse asked me a bundle of questions. Then she instructed me to put on the gown and walked out the door. The gown felt crisper than most and its styling a bit more chic. Fast photo op! In the shot above, note Dr. Freid’s framed ice hockey articles. In the photo below, see  the girl parts chart. An interesting contrast for a gynecologist’s examining room.

In came Dr. Freid with his nurse and a medical student in tow. Dr. Fried’s joke-telling took longer than the exam. “Looks good,” he said.

Five minutes later, back in my street clothes and seated in his office, we talked  about the roller coaster I’ve experienced since the surgery.

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“I hit you over the head when I called with the diagnosis,” Dr. Freid said. “I told you that you probably didn’t have cancer, and you did.”(An ultrasound had revealed fibroids, which he suspected were the cause of the spotting. The D and C was just a precaution). He leaned forward in his black leather chair. “I’d be shocked if you didn’t have some emotional moments.”

When I left, I thanked him, again, for saving my life, twice. (Dr. Freid nailed me on my blood pressure during my first visit, and that’s now under control.)

Then I did what I always do. I went to the mall across the street. I grabbed samples from Southern Season, a gourmet food store, and debated if I should get Chick-Fil-A for lunch or something a bit more nutritious.

As I made the decision, I walked with spring in my step. Happy One Year Cancer Anniversary to me!

P.S. If you’re scheduled for a hysterectomy, please don’t hesitate to contact me. I’d be glad to share my experience, which went well. My email is on the right.

Menopause

My Cancer Story: White Pants and Worry

White Pants Up Close

Brace yourself for some TMI.

On a recent trip to Dallas that featured several mother-daughter shopping outings, Laura pulled white pants from the rack. “I bet these would look good on you,” she said. “They can be dressy or casual and are great for summer.”

I tried the pants on. Laura nodded her approval. Next came the underwear discussion. My child is a  pro on what to wear under white pants. I found it difficult, though, to plunk out a chunk of change for two inches of fabric.

But that’s not the TMI part of this post. This is:

“We can wear white pants without worry!” menopause types like to say, honoring the fact that periods are over. But blood, and the fear of blood, means something different to me now. Blood, several years into menopause, was the red siren that launched my journey into endometrial cancer. (Please don’t panic if you see blood. There’s only a one in eight chance it’s cancer, but DO see your doctor.) In my case, the blood was bad blood.

My surgery and recovery went well, and as Cliff reminds me if I get mopey, my prognosis is quite good. Yet I live daily, (actually many times a day) in fear that I will discover blood. Every bathroom trip, every change of clothes, brings on the possibility. Cliff’s suggestion is not to look each time. I’m trying that and am having some success; however, habits are hard to break. For now, the NOT looking reminds me there’s something scary I could be looking for.

To those of you who are cancer survivors: how do you deal with the fear it will return? Any tips?

And thanks to Laura for suggesting I buy white pants. Hate cancer! Love my new pants!

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Cancer recurrence: I found this article on Cancer.net. I had a light bulb moment when I read the heading: “Accept your fears.” I was able to accept the cancer, especially since the prognosis is good. I never really wondered why me? Stuff happens. Instead of trying to figure out how to banish all fear, maybe I can have an easier time if I accept it like I did the cancer. Worth a try!

Endometrial Cancer, Menopause

Raising Awareness: Womb Cancer Support UK

Womb Cancer Support

Thanks to the posts about my own cancerI connected with Kaz Molloy, a uterine cancer advocate in the UK. There, uterine cancer is known as “womb cancer.” Kaz says there’s very little awareness of this kind of cancer in the UK. She shares her story with Friend for the Ride. Take it away, Kaz! 

When I was diagnosed with womb cancer, or endometrial carcinoma, to give it its medical name, on 23rd Dec 2009, I had never heard of it. I had to ask where my endometrium was!!

Little did I know then that many women who are diagnosed with it have never heard of this cancer either.

My cancer diagnosis came out of the blue; I had gone for an MRI scan to determine the size of fibroids that had been picked up a month earlier by ultrasound.

After my treatment ended in July 2010, I started searching the internet for support groups and organisations and discovered that there wasn’t a dedicated womb cancer charity or even any womb cancer support organizations here in the UK, so I set one up myself.

On 11th April 2011, Womb Cancer Support UK (WCSUK) was founded and although it initially started out as a Facebook support group, it has now grown, and we have a great social media network.

It became apparent soon after I started the group that there were indeed other women like me who had never heard of womb cancer, and so we decided to start raising awareness as well as supporting women who had been diagnosed.

Womb cancer is the 4th most common female cancer in UK, with almost 9,000 women a year being diagnosed. There are more women diagnosed with it than either cervical or ovarian cancer, yet unlike the others two, there is no national womb cancer awareness campaign. There is very little awareness about this cancer – indeed I was shocked to discover that many women believe that a smear test would pick it up; sadly many of us that have been diagnosed had clear smear tests only a few weeks before being diagnosed.

There is also the misconception that womb cancer only affects post-menopausal women, and I know of many women in their 20’s and 30’s who have struggled to get a diagnosis because their GP keeps telling them that they are “too young” to get womb cancer! We have women in their early 20’s who have been diagnosed, and indeed we have recently lost 2 young ladies in their early 30’s who died as a result of womb cancer.

In the absence of any national awareness campaigns we have taken it upon ourselves to produce and distribute awareness leaflets around the UK. It is very much a grass roots level approach as the organization has no funding and is run entirely by myself from a small island off the west coast of Scotland! We rely on women taking leaflets into their GP surgeries or clinics or displaying them in other appropriate places.

As we approach our 4th Birthday, I am so proud of what we have achieved. The women who are part of WCSUK are strong, positive women, and despite many of them being on their own personal journey through a cancer diagnosis, they are always there for each other to offer support and advise or just a shoulder to cry on.

We are determined to do what we can to raise the profile of womb cancer and spread the word about the risk factors and the signs and symptoms to be aware of.  We will do what we can because we have to.  Peach Sisters Rock!

Here’s the link to the WCSUK website.

Womb Cancer Support

Here’s their Facebook page.

Here to Talk

And Twitter!

Kaz

My name is Kaz Molloy, and I was diagnosed with womb cancer, stage 1 grade 2 on 23rd Dec 2009 when I was 46 years old. I had a total hysterectomy followed by chemotherapy and then external radiotherapy. My treatment ended on 12th July 2010.

I live with my husband on a small island off the west coast of Scotland, and it’s from here that I run Womb Cancer Support UK, which is an online national womb cancer support and awareness organization.